Garrett's Hypotonia Story

This is the blog about my son, Garrett. He was born in 2003 with hypotonia, but he does not have a diagnosis. His hypotonia seems to be mild to moderate.

Thursday, November 02, 2006

Long Overdue Update

I logged on this morning to see that I haven't posted in over a month. Ooops! Life has been busy lately!

Garrett's heart is perfectly fine! It's just an innocent heart murmur, and he has been released from cardiology. That was a huge relief! He put up quite a fight to fall asleep for the ultrasound. We finally got him knocked out, and then it took him an hour to wake up.

Garrett's cast came off on October 3. His leg wasn't fully healed, but they did not re-cast him. The bone was healed enough that it didn't need to be stablized, but the doctor didn't want him walking on it for at least 2 weeks. Garrett started walking on it after 2 weeks (with lots of help), and he somehow ended up with a fracture in his foot. It turns out to be a stress fracture, but I'm still concerned why it happened. He wore a splint for a week on his foot. The orthopaedist told me he is fine to walk on the foot and his leg now. So, Garrett started walking with assistance over the weekend, and he is now walking all by himself again as of 2 days ago!! It is so nice to see him walking again, and I know he is happy to be walking. He is still a little unsteady on his feet, but he'll get better as he walks more. It's so nice that I don't have to carry him around everywhere now.

When I dropped Garrett off at school this morning, he was very eager to get in his classroom. The teachers don't open the door until the bus arrives (or shortly before). We got there a few minutes early, and Garrett did not want to wait! He was knocking on the door and trying so hard to open the door. (The door is locked.) When they opened the door, he walked right in and over to the place where they do their "planning" for the day. Each day, the children pick an activity that they want to do that day. Garrett found the picture of the computer, of course! He knew exactly what he was choosing! Then he contiued to walk around the room, stopping at things he found interesting. It was nice to see him interact like that. It has been 2 months since he broke his leg. I'm sure he missed being able to explore.

Now we need to start potty training again. I haven't been as committed to that as I should.

I'm so glad things are getting back to normal. My life is less hectic than it was, so I feel like I can breathe again. We are still really busy, but I don't think that will ever change. I really don't know how moms with a SN child hold a full-time job. I can barely keep up with my 2 days a week! I actually don't know how any mom working a full-time job does it. I guess it's one of those things that you just do. People that don't have a SN child tell me that they don't know how I do it. I really don't know how I do it either. I've figured it out along the way, probably the same as a mom going back to work full-time after her baby is born figures out a routine that gets easier over time.