Garrett's Hypotonia Story

This is the blog about my son, Garrett. He was born in 2003 with hypotonia, but he does not have a diagnosis. His hypotonia seems to be mild to moderate.

Wednesday, September 27, 2006

Miscellaneous Update

A few things happening around here...

Garrett started preschool last week, and I think he enjoys it. He can't really tell us if he likes it or not, but he says "gool" (school) when he wakes up. I'm going to take that as a good sign that he likes going to school. He goes M-Th for 3 hours in the morning. Rylan is getting some much needed one-on-one time with me. He gets so excited to see Garrett after school though. Those 2 really enjoy each others company.

Tomorrow is a big day for Garrett. He will have an ultrasound of his heart. We have to be there at 7:30am, and he will be under anesthesia so that he holds still. I am hoping the results will be read immedately afterward. I hate waiting for the results of tests! I'm already on edge about him having a heart defect. The unknown is the part that drives me crazy.

The bright green cast comes off next Tuesday! Woo hoo!! I am so sick of that thing. Poor Garrett must hate it even more. Bath time is such a pain, and we really can't do the normal things we were doing pre-broken leg. I hope he is willing and able to start attempting to walk soon after the cast is off. I'm not expecting him to stand up and take off the minute the cast comes off, but I am hoping he will at least bear weight on his leg shortly after. Dave and I are leaving for a week long cruise the Saturday after his cast comes off. I just hope he is making an attempt to walk by that time.

Friday, September 15, 2006

Garrett Broke His Leg!

Last week (Tuesday), Garrett was working with his PT on stair climbing, and he fell. He only fell down 3 or 4 steps. I didn't see the fall happen, so I don't know how bad it was or wasn't. He walked on it for a while, then limped, and then he wouldn't stand on it at all. I really didn't think it was broken. I thought maybe he had popped his knee or hip out of place and it popped right back in place. That happened to his elbow once, and he wouldn't move his arm for several days. I decided to take him to the ER anyway, just to be sure. (It was evening by that time, so I couldn't just call the ped to get a referral for an x-ray.) He seemed to be in more pain than with the elbow incident. Sure enough, his leg was broken! The break is on the tibia, just below his knee.

Garrett wore a splint for almost a week, and he now has a bright green cast. He doesn't seem to be in pain anymore. He is even trying to crawl around a little bit. I know he can't get comfortable at night. He wakes up several times at night. I want to go into his room and sleep in there with him, but I'm afraid that would just start a really bad habit. I do check on him if it sounds like he is crying out in pain or if I hear a thud and then crying. He hasn't fallen out of his bed yet. The thud has always just been his leg banging against something.

He will get his cast off in a little over 2 weeks. I was so excited that he only had to wear the cast for 3 weeks! I thought he would have to wear it for 6 weeks, so 3 seemed like no big deal at all! I just hope his leg heals properly. Dh and I leave for a cruise the week after he gets his cast off. I hate to leave him, but I know he'll be fine.